Association for Frontotemporal Degeneration

The Association for Frontotemporal Degeneration (AFTD) is a non-profit organization whose mission is to: -Promote and fund research into finding the cause, therapies, and cures for frontotemporal degeneration (FTD); -Provide information, education, and support to persons diagnosed with FTD, their families and caregivers; - Web-based (Zoom) Support Group AFTD Support Group for People with FTD. A mutual support group that is facilitated by AFTD staff and meets monthly via Zoom, an easy to use computer web-camera platform, offered the 2nd and 4th Tuesday of the month, 4pm-5pm EST. Contact info@theaftd.org or 866-507-7222 for more information - Online Support •FTD Patient Support Group on Facebook. A closed, private group that is facilitated and moderated by people diagnosed with FTD. For more info contact: 1-866-507-7222. •Primary Progressive Aphasia Group on Facebook. A closed, private group •The FTD Support Forum offers online support for caregivers and patients. -Informal Connections In some cases, AFTD can help to connect people interested in peer support with another person in their area or with a similar interest. These are informal connections that individuals manage themselves. For more information contact the AFTD HelpLine (866-507-7222 or info@theaftd.org). The AFTD offers Comstock Respite and Travel Grants, https://www.theaftd.org/living-with-ftd/resources/comstock-grants/ - modest financial assistance grants to caregivers who would like to attend the FTD caregiver conference, and grants available to help full-time, unpaid caregivers to arrange short-term care for their loved one. Must be the unpaid caregiver of loved one who has been diagnosed with frontotemporal degeneration. If you have any questions or concerns about Comstock Grants, need help with self-care, or need any other guidance for your FTD journey, reach out to the AFTD HelpLine at 1-866-507-7222 or info@theaftd.org. - Participate to Help Drive Breakthroughs in FTD Research Scientists are closer than ever to breakthroughs that will bring meaningful change to families facing FTD. Participation from the AFTD community makes their work possible! https://www.theaftd.org/research-clinical-trials/ways-to-participate/ SD