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Kenosha ADRC Resource Library

National Organization for Rare Disorders

Physical Addresses:
7 Kenosia Avenue
Danbury, CT 06810
Mailing Addresses:
7 KENOSIA AVENUE
DANBURY, CT 06810
Phone Numbers:
(Click to open in Google Maps )
Program Info:
Operating Agency:
National Organization for Rare Disorders
In Charge:
Hours:
Monday- Thursday, 8:30am-7:00pm; Friday 8:30am-6:00pm, Eastern Standard Time.
Eligibility:
None
Fees:
None
Intake Process:
Call for details
Program Licenses
Accessibility:
Call for details,
Languages:
*Translation services available by request, English, Spanish,
Website(s):
https://rarediseases.org
Email(s):
Keywords:
Clinical Trial, Medical, Drug, Financial Assistance, Financial Assistance, Health C, Financial Assistance, Prescrip, Health Education, Health, Rare Disorders, HIV/AIDS, Info/Care, Hodgkin's Disease, Medical, Research studies, Medication Assistance Programs, Paget's Disease, Prescription Assistance Programs, Rare Disorders, Tay-Sachs Disease, Whipple's Disease, Wilson's Disease, Wolman's Disease,
Last Updated:
1/30/2026
Program Description:
NORD is a clearinghouse for information about rare disorders. Reports on over 1,100 rare disorders are available by mail or via the internet. Patients, families and professionals can call. Networking Program allows families and patients with same diagnosis to contact each other. Administers programs of last resort for certain prescription pharmaceuticals use to treat rare disorders. Provides specific assistance programs, which are designed to help patients with out-of-pocket costs associated with their insurance plans, or other expenses related to a patient's diagnosis. Patient Assistance Programs https://rarediseases.org/patient-assistance-programs/ We provide patient assistance programs to help individuals living with rare diseases: - Obtain medication - Receive financial help with insurance premiums and co-pays - Get diagnostic testing assistance - Receive travel assistance for clinical trials or consultation with disease specialists - Provide caregiver respite - Offer support during emergencies - Gain knowledge about rare diseases - Connect with other patient assistance programs - Help with Financial Assistance Our RareCare program helps patients obtain life-saving or life-sustaining medication they could not otherwise afford. The program also provides financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists. Please call or access website,for a complete list of applicable diagnosis programs. SD, PP, Health & Wellness

This information is provided as is with no guarantee as to the accuracy of the information. Information is considered to be accurate as of the date of the last update, printed above. Aging & Disability Resource Center may not be held liable for misuse of this information.

The ADRC does not recommend or screen the businesses or service organizations in our data base and is not responsible for any vendor business policies. Please use your discretion when calling for services, requesting estimate, reviewing references and licensure. For professional license information, you can contact the Wisconsin Department of Regulation and Licensing by phone: (608) 266-2112, or access their website: https://licensesearch.wi.gov/.

Please contact the ADRC if you need additional assistance or have any additional questions Kenosha County ADRC 8600 Sheridan Road; Kenosha, WI 53143 phone: 262-605-6646; email: adrc@kenoshacounty.org Hours: Monday-Friday 8:00am-5:00pm.

You can also contact the Better Business Bureau by phone: (800) 273-1002 or access their website: https://www.wisconsin.bbb.org

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